A Jeanne Site
California State University, Dominguez Hills
University of Wisconsin, Parkside
Latest update: September 22, 2000
Faculty on the Site.
- ."Listen for the "whispering disease": Learn the subtle signs and symptoms of Ovarian Cancer"
by Cheryl L. Mee, RN, C, MSN, Clinical Director, Nursing 2000 . .- Summer 2000 Update In Response to Outreach
Peritoneal Cancer, Peritoneal Carcinoma, Peritoneum Cancer
- Bulletin Board with Posts on Peritoneal Cancer
- Ovarian cancer: Do doctors know best?
90 percent of women in study get sub-standard treatment- How to Find Cancer Resources in Your Own Community
Cancer Net- Options for Getting Emotional Support
Cancer Net- Questions and Answers About Finding Cancer Support Groups
Cancer Net- Tumor Markers (CA 125)
Cancer Net
Peritoneal Cancer - An E-Mail Alert to Peritoneal Cancer
and an American Cancer Society Response to the E-MailThe following e-mail was waiting for Jeanne when she returned from the national meetings of the American Society of Criminology. Because this is merely the first in a whole set of materials we expect to be available through Dear Habermas for support to those facing cancer and their families, we decided the e-mail should go on site so that all of us can share it. Our thanks to Pauline Robinson for sending it, and to Rita for having kept it in the chain on its way to us. Special thanks to Carolyn Benivegna for caring enough to share it with us all..
Be sure to follow the site for the materials that our students are creating both for Dear Habermas and for the Dear Habermas Kids' Page on cancer and the relationships we need to create a community of caring.
To check the validity of this information and to locate sources for further information, check with the American Cancer Society Site External Site.
Eleven articles are presently in their search engine. Search for CA 125.Note particularly:
New Study Finds CA-125 Test Useful in Assessing Ovarian Cancer Treatment
Link added February 18, 2000.Also note:
Dispelling Rumors from Forwarded E-Mails This e-mail on peritoneal cancer is the second one discussed.
Link added February 18, 2000.To check the validity of any e-mail you receive refer to On Evaluating the Authority of E-Mail.
The Original E-Mail to jeanne on Peritoneal Cancer
Date: Thu, 12 Nov 1998 10:55:23 -0800 (PST)
From: PLROBINSON@DHVX20.CSUDH.EDUSupport for Women's Health
URGENT! URGENT! URGENT!
This information is very REAL. This lady is with the Centers for Disease Control and Prevention and is spreading the word for all us ladies that get rather complacent with our doctors. She has forwarded this message to several of her co-workers and colleagues, which is how it got to me. Please read and heed this message and share it with your female friends and family. It could be a lifesaver. Rita
THIS IS VERY IMPORTANT INFORMATION. READ IT!!!
For Friends without access MAKE HARD COPIES!!!As all of you know, I have Primary Peritoneal Cancer. This cancer has only recently been identified as its OWN type of cancer; but it is, essentially, Ovarian Cancer. Both types of cancer are diagnosed in the same way (with the "tumor marker" CA-125 blood test), and they are treated in the same way (surgery to remove the primary tumor and then chemotherapy with Taxol and Carboplatin).
Having gone through this ordeal, I want to save others from the same fate. That is why I am sending this message to you and hope you will print it and give it or send it via e-mail to everybody you know.
One thing I have learned is that each of us must take TOTAL responsibility for our own health care. I thought I had done that because I always had an annual physical, had my annual mammogram and PAP smear, did monthly Self Breast Exam, went to the dentist at least twice/year, etc. I even insisted on a sigmoidoscopy and a bone density test last year.
When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers. LITTLE DID I KNOW! I don't have ovaries (and they were HEALTHY when they were removed!), but I have what is essentially ovarian cancer. Strange, isn't it?
These are just SOME of the things our Doctors never tell us. ONE OUT OF EVERY 55 WOMEN WILL GET OVARIAN OR PRIMARY PERITONEAL CANCER! THE "CLASSIC" SYMPTOMS ARE:
- AN ABDOMEN THAT RATHER SUDDENLY ENLARGES
- AND CONSTIPATION AND/OR DIARRHEA.
I had these classic symptoms and went to the Doctor. Because these symptoms seemed to be "abdominal," I went to a gastroenterologist. He ran tests that were designed to determine whether there was a bacterial infection; these tests were negative, and I was diagnosed with "Irritable Bowel Syndrome." I guess I would have accepted this diagnosis had it not been for my enlarged abdomen. I swear to you, it looked like I was 4-5 months pregnant! I, therefore, insisted on more tests. They took an X-Ray of my abdomen; it was negative. I was, again, assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to Europe. I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong. I INSISTED on more tests, and they (reluctantly) scheduled me for a CT-Scan (just to shut me up, I think).
This is what I mean by taking charge of our own health care. The CT-Scan showed a lot of fluid in my abdomen (NOT normal!). Needless to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the hospital (not a pleasant procedure, I assure you, but NOTHING compared to what was ahead of me).
Tests revealed cancer cells in the fluid. Finally, finally, finally, the Doctor ran a CA-125 blood test and I was properly diagnosed.
I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER AND, YET, THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME ... NOT AS PART OF MY ANNUAL PHYSICAL EXAM AND NOT WHEN I WAS SYMPTOMATIC. THIS IS AN INEXPENSIVE AND SIMPLE BLOOD TEST!!! PLEASE, PLEASE, P-L-E-A-S-E TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS. BE FOREWARNED THAT THEIR DOCTORS MIGHT TRY TO TALK THEM OUT OF IT, SAYING "IT ISN'T NECESSARY."
BELIEVE ME, HAD I KNOWN THEN WHAT I KNOW NOW, WE WOULD HAVE CAUGHT MY CANCER MUCH EARLIER (BEFORE IT WAS A STAGE 3 CANCER)!!! INSIST ON THE CA-125 BLOOD TEST; DON'T TAKE "NO" FOR AN ANSWER.
THE NORMAL RANGE FOR A CA-125 BLOOD TEST IS BETWEEN ZERO AND 35. (MINE WAS 754 ... THAT'S RIGHT, 754!) IF THE NUMBER IS SLIGHTLY ELEVATED, YOU CAN HAVE ANOTHER ONE DONE IN THREE OR SIX MONTHS AND KEEP A CLOSE EYE ON IT JUST LIKE WOMEN DO WHEN THEY HAVE FIBROID TUMORS OR WHEN MEN HAVE A SLIGHTLY ELEVATED PSA TEST (PROSTATE SPECIFIC ANTIGENS) THAT HELPS DIAGNOSE PROSTATE CANCER.
HAVING THE CA-125 TEST DONE ANNUALLY CAN ALERT YOU EARLY, AND THAT'S THE GOAL IN DIAGNOSING ANY TYPE OF CANCER - CATCH IT EARLY.
I hope I haven't bored you with all of this. But I hope I HAVE scared you enough to motivate you to action.
Do YOU know 55 women? If so, at least one of them will have this VERY AGGRESSIVE cancer-and maybe, just maybe, it will be YOU. I hope not. Please, go to your Doctor THIS WEEK and insist on a CA-125 test and have one EVERY YEAR for the rest of your life. And forward this message to every woman you know and tell all of your female family members and friends. As the Nike ads say, "JUST DO IT!"
Please don't think youth will protect you, either. Though the median age for this cancer is 56 (and, guess what, I'm exactly 56), women as young as 22 have it. Age is not a factor.
Thank you for your time. My best wishes for your continued good health.
Carolyn Benivegna